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Our Findings
The Autoimmune COVID-19 Project has been assessing the concerns and behaviors of patients with autoimmune conditions using surveys over the course of the COVID-19 pandemic. Here is what we have learned so far about the respiratory illness symptoms, experiences of COVID-19 testing, telehealth, immunosuppressive therapy, and sources of information preferences of patients living with autoimmune conditions during the pandemic.
Patient Concerns about COVID-19 TESTING
Based on a registry of 2351 patients from the ArthritisPower, CreakyJoints, and Vasculitis networks, the following patient concerns on COVID-19 testing were reported: 27% patients would like to have been tested, but only .03% of patients were actually tested for COVID-19. The main reasons patients were not tested for COVID-19 was that either a test was not available or was not offered or recommended by a doctor. To see more on what we learned about patient concerns on COVID-19 testing check out this infographic.
Telemedicine Survey
Telemedicine visits are becoming an increasingly important aspect of rheumatology care. In a survey conducted by the Arthritis and Rheumatic Disease COVID-19 Project, 73% of participants reported that their providers are offering telemedicine visits. Of these participants, 69% have had at least one telemedicine visit with their provider.
Click here to learn more about how to make the most of your telemedicine appointment.
Webinars
The Autoimmune COVID-19 Project seeks to provide information related to the COVID-19 pandemic for patients with autoimmune conditions. Through a series of webinars, hosted by The Global Healthy Living Foundation, patients can learn more about how to manage their condition during the pandemic.
COVID-19 Vaccine: What to Know if You Are Immunocompromised
During the Global Healthy Living Foundation’s recent webinar, Jeffrey Curtis, MD, Chair of the ACR COVID-19 Vaccine Clinical Guidance Task Force, discusses what people who are immunocompromised should know about the COVID-19 vaccine.
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Flu Vaccine and COVID-19: What People with Chronic Illness Need to Know
Learn more about the importance of getting a flu vaccine when you have underlying health issues during the COVID-19 pandemic.
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Staying Safe During COVID-19: What People with Chronic Illness Need to Know
The COVID-19 pandemic has uniquely affected people with arthritis and chronic illness. This webinar aims to help people living with these conditions understand how to prevent infection and engage in daily routines and activities more safely.
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How the COVID-19 Pandemic Affected Patients with Arthritis and Rheumatic Disease
The COVID-19 pandemic has uniquely affected people with arthritis and related health conditions. This webinar aims to help people living with these conditions make better informed decisions to manage their disease during the COVID-19 pandemic.
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