The Autoimmune COVID-19 Project

The Autoimmune COVID-19 Project seeks to understand the concerns and behaviors of patients with autoimmune conditions during the COVID-19 pandemic. Surveys over time will ask patients’ about their respiratory illness symptoms, experiences of COVID-19 testing, modified doctor visits using telehealth, concerns and choices regarding immunosuppressive therapy, and preferred sources of information about COVID-19.

A patient-powered study of the Autoimmune Research Collaborative

This important research project is a combined effort of patient-powered research networks, their academic partners and other patient organizations.

If you would like to join, please choose the patient-powered research network below that best fits your autoimmune or related condition.

Created by CreakyJoints® and rheumatology researchers at the University of Alabama at Birmingham (UAB), and supported by a multiyear, multimillion dollar investment by the Patient-Centered Outcomes Research Institute (PCORI), ArthritisPower is the first-ever patient-centered research registry for joint, bone, and inflammatory skin conditions.

IBD Partners is an online research network created by the Crohn’s & Colitis Foundation and the University of North Carolina School of Medicine. We bring together inflammatory bowel disease (IBD) patients and researchers in a revolutionary partnership aimed at optimizing treatment and improving patients’ lives.

Join the IBD study

iConquerMS™ was launched by the Accelerated Cure Project for MS, a nonprofit organization with proven experience in developing and sharing resources with MS researchers worldwide. Other organizations have partnered with ACP to make the iConquerMS™ vision a reality.

Join the MS study

The V-PPRN seeks to transform how clinical research in vasculitis is conducted by directly engaging patients, investigators, care providers, and health systems to develop research methods to electronically collect health records and patient-reported data on a large number of patients with various forms of vasculitis.

Join the Vasculitis study
About the Autoimmune Research Collaborative

The Autoimmune Research Collaborative (ARC) is comprised of four Patient-Powered Research Networks (PPRNs) working together to conduct patient-centered research in adult autoimmune conditions: the ArthritisPower® Research Registry, IBD Partners, iConquerMS™ and the Vasculitis Patient-Powered Research Network. ARC, formerly known as the Autoimmune and Systemic Inflammatory Syndromes Collaborative Research Group (ASIS CRG), initially formed within PCORnet, the National Patient-Centered Clinical Research Network. Individual ARC networks are supported and coordinated by patient organizations including Accelerated Cure Project, CreakyJoints, Crohn’s & Colitis Foundation, the Vasculitis Foundation, and affiliated academic institutions including the University of Alabama at Birmingham, the University of North Carolina at Chapel Hill and the University of Pennsylvania. ARC advances patient-centered outcomes research, and comparative effectiveness and pragmatic research, in autoimmune and systemic inflammatory diseases.