The Autoimmune COVID-19 Project

The Autoimmune COVID-19 Project seeks to understand the concerns and behaviors of patients with autoimmune conditions during the COVID-19 pandemic. Surveys over time will ask patients’ about their respiratory illness symptoms, experiences of COVID-19 testing, modified doctor visits using telehealth, concerns and choices regarding immunosuppressive therapy, and preferred sources of information about COVID-19.

A patient-powered study of the Autoimmune Research Collaborative

This important research project is a combined effort of patient-powered research networks, their academic partners and other patient organizations.

If you would like to join, please choose the patient-powered research network below that best fits your autoimmune or related condition.

Created by CreakyJoints® and rheumatology researchers at the University of Alabama at Birmingham (UAB), and supported by a multiyear, multimillion dollar investment by the Patient-Centered Outcomes Research Institute (PCORI), ArthritisPower is the first-ever patient-centered research registry for joint, bone, and inflammatory skin conditions.

IBD Partners is an online research network created by the Crohn’s & Colitis Foundation and the University of North Carolina School of Medicine. We bring together inflammatory bowel disease (IBD) patients and researchers in a revolutionary partnership aimed at optimizing treatment and improving patients’ lives.

Join the IBD study

iConquerMS™ was launched by the Accelerated Cure Project for MS, a nonprofit organization with proven experience in developing and sharing resources with MS researchers worldwide. Other organizations have partnered with ACP to make the iConquerMS™ vision a reality.

Join the MS study

The V-PPRN seeks to transform how clinical research in vasculitis is conducted by directly engaging patients, investigators, care providers, and health systems to develop research methods to electronically collect health records and patient-reported data on a large number of patients with various forms of vasculitis.

Join the Vasculitis study
About the Autoimmune Research Collaborative

The Autoimmune Research Collaboration (ARC) consists of four Patient-Powered Research Networks (PPRNs) working together to conduct patient-centered research on autoimmune diseases in adults: the ArthritisPower® Research Registry, IBD Partners, iConquerMS™ and Vasculitis Patient-Powered Research Network. ARC, formerly known as the Autoimmune and Systemic Inflammatory Syndrome Collaborative Research Group (ASIS CRG), was originally formed as part of PCORnet, the National Patient-Powered Clinical Research Network. The individual ARC networks are supported and coordinated by patient organizations, which was funded by including Accelerated Cure Project, CreakyJoints, Crohn's & Colitis Foundation, the Vasculitis Foundation, and affiliated academic institutions including University of Alabama at Birmingham, University of North Carolina at Chapel Hill and University of Pennsylvania. ARC promotes patient-centered outcomes research as well as comparative effectiveness and pragmatic research in autoimmune and systemic inflammatory diseases.